Meghann
turned her wheelchair around and said “Bye Mommy.'
I
stood there as if my shoes were glued to the floor. I couldn't move.
I was stunned. My eyes followed her down the long hallway toward
her new independence without me. That was it. I was no longer needed.
I waited for a trap door to open in the floor and swallow me up with
all the other “useless moms.”
Dan
gently placed his hand in mine, and we quietly left the building.
Dan automatically opened the van door for me. He had been opening my
car door since the day we met nine years ago. Somehow this small act
of kindness felt different today. I was right. It was different. This
was the beginning of a new journey for Meghann, myself, and Dan. I
watched Dan slowly walk around the van, and climb into the drivers
seat. I kept Meghann's door to her new home in my peripheral vision
waiting or hoping she would appear begging to go home with us. I
couldn't stop the lump in my throat from growing, and soon the tears
were blinding my vision. Dan wrapped me in his arms, and I cried for
what seemed like hours. When I finally stopped crying, I looked up at
him with my cheeks still wet from tears. His eyes were blood shot
from his own tears. We were a hot mess! Dan handed me the tissue
box, and our tears turned into laughter. I mean really, did we want
Meg to wheel out to us crying and begging us to go home? Well,
maybe I wanted it a little bit.
Meghann
moved into an independent home with seven other girls three years
ago. I think it was my worst and best day of my life. It was
the worse because I had an overwhelming amount of guilt for leaving
Meg in the home. It was the best day because I was excited to see
Meghann begin to blossom into an independent young adult. Although I
knew that Meghann would thrive, it didn't stop my guilty feelings
about her moving out of my home. Of course, it didn't help when
“friends” said they couldn't believe I was putting Meg in a home.
My response was always the same. “Doesn't Meghann deserve to have
friends, a job, and a life outside of my home? After all, isn't a
parent's goal to raise their children to become independent from us?
Why should Meghann be any different?
The
first week that Meg moved out was like a vacation for me- no diapers
to change, no medicine to administer, no therapy, no bathing, no
dressing, no brushing teeth, no combing hair, and so forth. But,it
wouldn't take long for the pangs of guilt to creep into my head. All
it took was for me to vacuum up a puzzle piece or crayon, and my
emotional roller coast of guilt would take over. I couldn’t win.
After
a week, it was finally time to go visit Meghann. I was like a
kid at Christmas. I could hardly wait to pick Meg up at her new home.
We decided to take a trip to the mail after lunch. When we
arrived at the mall, there happened to be a kids fun fair.
Meghann
and I went to the end of the long line to get her face painted.
While we waited, I chatted with a mom in line ahead of us. We
talked about the face painting and her children. She asked me if
Meghann was my child. The next comment left me speechless. She
looked directly at me, and said “Good for you. So many parents put
their special needs kids in those homes. That's so awful.”
WOW!
Meg had just moved into her independent home. That comment was like a
knife stabbing me in the heart and then twisting that knife deeper
and deeper. How could a total stranger make me feel guilty? I am
usually quick to respond to people and their ignorant comments. Today
was an exception because I was struggling with my overwhelming
desire to bring my baby home. I was constantly telling myself that
Meghann's transition into a new home was not about me. It was also
not about others ignorant beliefs of what I should or shouldn’t do
for my daughter. I am not sure I will ever totally eliminate
guilt from my mind. I do know that every time I walk in the door at
Meghann’s house that I feel the love of family from Meghann's
roommates and staff. There is a positive energy that instantly wraps
around anyone who is lucky enough to enter the house. I am one of
the lucky ones. I have been wrapped, surrounded, and swallowed up
with the genuine love and goodness in Meghann's new home. I think
I can learn to live with a little guilt. At least for now.
Listen
to this interesting short TedTalk by Brene Brown. It is worth your
time. She's awesome!
I would love to hear some feedback from anyone who is reading my blog.
ReplyDeleteThanks for sharing all of this, Jill. I'm certainly learning a lot - not only about you and your life, but about what it's like with a special needs child. Not having to experience it myself, it's wonderful and heartbreaking all at the same time to read your experiences and learn through you. (Also, it's wonderfully written!) Take care, big hugs...and talk to you soon.
ReplyDelete~Tina
Tina,
DeleteThank you for the comments. I am happy that I have been able to allow you to experience something new. We are never too old to learn from each other. Thanks again...hugs back !!
What a wild rollercoaster of emotions this has all been for you. But you know, you're doing it all just right. You're following your gut, your heart. That will always be the right move when you come from a place of love.
ReplyDeleteLove has always lead me in the right direction when it comes to being Meg's mom, and it has never let me down. Thanks for the kind words Peg.
DeleteBeautifully written, Jill. It is nice that you are able to travel more now and explore the world! ~AP
ReplyDeleteMeg and I are both exploring the world !! Thanks for the comment.
Delete